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Items by Alison Bryan
Stop Eugenics!
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Transcript of ‘Debating Deafness And Embryo Selection: Are We Undermining Reproductive Confidence In The Deaf Community?’
Posted: April 23rd, 2008, 12:40pm UTC by Alison Bryan
On the 9 April 2008, the Progress Educational Trust and the Wales Gene Park, organised a debate in Cardiff, “Debating Deafness And Embryo Selection: Are We Undermining Reproductive Confidence In The Deaf Community?” This debate was primarily to focus on the merits of Clause 14(4)(9) of the Human Fertilisation and Embryology Bill. This event was oversubscribed, and had a long waiting list; which gives indicates the topic’s current importance. A full English transcript, can now be found here [PDF]. ... -
Disability Now Coverage
Posted: April 14th, 2008, 12:45pm UTC by Alison Bryan
Disability Now wrote a recent Editorial which can be seen here [PDF]. This compliments a recent article by Dr Steve Emery, in the same publication. Details of other media coverage can be found here and here. An updated list will follow shortly. ... -
Transcript: BBC Radio Wales, Good Morning Wales
Posted: April 11th, 2008, 12:02pm UTC by Alison Bryan
BBC Radio Wales’ programme Good Morning Wales broadcast a debate on genetics on Wednesday 9th April 2008, at approxtimately 8:40am. Here’s a transcript, with thanks to Claire from TeamHado. Rhun ap Iowerth – Now you might assume that if deaf people have children, they’d hope that their hearing would be normal. However, you might be wrong. There’s an intriguing debate going on at the moment over whether such parents should be able to choose if their child is deaf or not. Bethan Rhys Roberts – well, a clause in the controversial Human Fertilisation and Embryology Bill going through Parliament at the moment would mean embryos used in IVF treatment would have to be screened out if the ... -
Letter from WFD to the Department of Health
Posted: April 8th, 2008, 7:30pm UTC by Alison Bryan
The World Federation of the Deaf (WFD) wrote a letter to the Department of Health over their concerns over section 14(4)(9) of the Human Fertilisation and Embryology Bill (HFEB). A copy of this letter can be found here [PDF]. It is good to get international support, and to get a wider frame of reference to the implications of this proposed legislation. ... -
Department of Health response to 19 March meeting
Posted: April 8th, 2008, 10:58am UTC by Alison Bryan
On 19 March representatives met the HFE Bill team at the Department of Health. The summary of this meeting can be found here in English and BSL. The Department of Health has since formally responded to points raised, in English here [PDF] and a BSL translation: [See post to watch Flash video] ... -
Summary of meeting at the Department of Health
Posted: April 1st, 2008, 2:36pm UTC by Alison Bryan
On the 19 March 2008 representatives of Stop Eugenics, the BDA, the Progress Educational Trust and two individual genetics counsellors met with the HFE Bill Team at the Department of Health. The purpose of the meeting was to discuss our concerns over Clause 14(4)(9) and relevant Explanatory Notes of the Human Fertilisation and Embryology Bill (HFEB). A summary of the meeting can be found in English here [PDF] and in British Sign Language: [See post to watch Flash video] The Department of Health will be releasing their response to this meeting in the near future. Stop Eugenics would like to thank all those involved for making this meeting happen. ... -
Deaf People & Genetics: Media Coverage, Part 2
Posted: March 17th, 2008, 2:17pm UTC by Alison Bryan
Following this post, here’s the second summary of coverage on this subject (from the past week): Radio: BBC Radio 5 Live: The Victoria Derbyshire Show, Transcript here, Discussion here and here BBC Radio 4: The Moral Maze, transcript and online discussion BBC World Service: Have Your Say, transcript, discussion, and transcript comment BBC Radio 4: Today, Lord Winston & Professor Jones, transcript Television: BBC Breakfast: Interview with Tomato Lichy and Paula Garfield BBC Breakfast: Interview with Jackie Ballard (link to follow) Scottish Television: The Five Thirty Show, Transcript here BBC News: Catholic pressure on ... -
Transcript: BBC World Service, Have Your Say
Posted: March 13th, 2008, 12:03am UTC by Alison Bryan
Tonight BBC World Service, Have Your Say’s broadcast touched on the subject of genetics and what this campaign has been about. It featured Dr. Anna Middleton. A full transcript is below, and a massive thank you to Sam Taylor for transcribing this. To the BBC: shame on yourselves, your a multi million £ organisation, where’s the access for the very people you are talking about? If you wish to participate in discussion, you may do so here. World Have Your Say, BBC World Service, 6pm. March 12th 2008 Ros & Shymar are the two presenters; everyone else is a guest. Ros Atkins: Do you see blind and deaf people as a minority in society and no more disabled ... -
BBC Breakfast, Interview with Tomato Lichy and Paula Garfield
Posted: March 12th, 2008, 7:46pm UTC by Alison Bryan
Here’s a BSL/English Interpreted version of this morning’s BBC Breakfast interview with Tomato Lichy and Paula Garfield: Hopefully the earlier interview with Jackie Ballard, CEO of RNID will be available online soon. ... -
Transcript: BBC Radio 4 Today, Lord Winston & Professor Jones
Posted: March 12th, 2008, 7:23pm UTC by Alison Bryan
Yesterday’s BBC Radio 4’s Today featured Lord Winston and Professor David Jones (note link will be inappropriate a week later, broadcast Tuesday 11 March 2008). Both discussed the Human Fertilisation and Embryology Bill, with specific reference to wanting deaf babies. Below is a transcript, with thanks to Neil Corry (shame on the BBC for not providing access, again): John Humphries: As far as you’re concerned Lord Winston, your reaction to what that man said on this programme yesterday, accepting that there will be very few cases where this choice would have to be made. LW: I think there was a misunderstanding there, because I think that no government, and certainly not this one, is intending to enforce screening ... -
Deaf People & Genetics: Media Coverage
Posted: March 11th, 2008, 9:44pm UTC by Alison Bryan
Firstly, for those of you in the UK, tomorrow BBC Breakfast will air an interview with the RNID (7.10am) and also Tomato Lichy plus Paula Garfield (8.10am). Dr. Steve Emery will be appearing on BBC Radio 4, The Moral Maze (8.00-8.45pm). Irrespective of where you are located, you should be able to participate in debate online afterwards and we would actively encourage you to do so. We will try and make available media on this blog. Things have taken a faster pace in the UK, and within the last two days here’s media covering this issue (in response to Clause 14(4)(9), which this campaign is about). Radio: BBC Radio 4: Today BBC Radio 2: ... -
Stop, by Yesenia Ballesteros
Posted: February 19th, 2008, 1:47pm UTC by Alison Bryan
By Artist Yesenia Ballesteros, with input from NTID Civil Rights and Deaf People classmates: ... -
Do you know of anyone going through or considering IVF?
Posted: January 10th, 2008, 9:31am UTC by Alison Bryan
If so could you please contact BBC See Hear team by e mailing: david (dot) street (at) bbc (dot) co (dot) uk (make obvious changes to the e mail address). Its in relation to a programme on the Human Fertilisation and Embryology Bill. Thanks. ... -
Sunday Times article & my communication with the Sunday Times
Posted: December 23rd, 2007, 2:27am UTC by Alison Bryan
Today the Sunday Times is carrying an article on “Deaf demand the right to designer deaf children“, which is supposed to be an article on this campaign. Except it totally misrepresents what this campaign is about! We were predicting sensationalism, and misrepresentation in order to making hearing people choke on their cornflakes over breakfast, but there’s nothing like seeing this in print. In the interests of transparency, these are the e mails that I sent to Sarah-Kate Templeton, Health Editor at the Sunday Times. Please take time to read the article then my comments below. ______________________________ 21 December 2007 Hi Sarah-Kate You contacted Francis Murphy at the BDA regarding the Stop Eugenics campaign. Further information is available on our ...