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Stop Eugenics!
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Transcript of ‘Debating Deafness And Embryo Selection: Are We Undermining Reproductive Confidence In The Deaf Community?’
Posted: April 23rd, 2008, 12:40pm UTC by Alison Bryan
On the 9 April 2008, the Progress Educational Trust and the Wales Gene Park, organised a debate in Cardiff, “Debating Deafness And Embryo Selection: Are We Undermining Reproductive Confidence In The Deaf Community?” This debate was primarily to focus on the merits of Clause 14(4)(9) of the Human Fertilisation and Embryology Bill. This event was oversubscribed, and had a long waiting list; which gives indicates the topic’s current importance. A full English transcript, can now be found here [PDF]. ... -
Disability Now Coverage
Posted: April 14th, 2008, 12:45pm UTC by Alison Bryan
Disability Now wrote a recent Editorial which can be seen here [PDF]. This compliments a recent article by Dr Steve Emery, in the same publication. Details of other media coverage can be found here and here. An updated list will follow shortly. ... -
Transcript: BBC Radio Wales, Good Morning Wales
Posted: April 11th, 2008, 12:02pm UTC by Alison Bryan
BBC Radio Wales’ programme Good Morning Wales broadcast a debate on genetics on Wednesday 9th April 2008, at approxtimately 8:40am. Here’s a transcript, with thanks to Claire from TeamHado. Rhun ap Iowerth – Now you might assume that if deaf people have children, they’d hope that their hearing would be normal. However, you might be wrong. There’s an intriguing debate going on at the moment over whether such parents should be able to choose if their child is deaf or not. Bethan Rhys Roberts – well, a clause in the controversial Human Fertilisation and Embryology Bill going through Parliament at the moment would mean embryos used in IVF treatment would have to be screened out if the ... -
Letter from WFD to the Department of Health
Posted: April 8th, 2008, 7:30pm UTC by Alison Bryan
The World Federation of the Deaf (WFD) wrote a letter to the Department of Health over their concerns over section 14(4)(9) of the Human Fertilisation and Embryology Bill (HFEB). A copy of this letter can be found here [PDF]. It is good to get international support, and to get a wider frame of reference to the implications of this proposed legislation. ... -
Department of Health response to 19 March meeting
Posted: April 8th, 2008, 10:58am UTC by Alison Bryan
On 19 March representatives met the HFE Bill team at the Department of Health. The summary of this meeting can be found here in English and BSL. The Department of Health has since formally responded to points raised, in English here [PDF] and a BSL translation: [See post to watch Flash video] ... -
Summary of meeting at the Department of Health
Posted: April 1st, 2008, 2:36pm UTC by Alison Bryan
On the 19 March 2008 representatives of Stop Eugenics, the BDA, the Progress Educational Trust and two individual genetics counsellors met with the HFE Bill Team at the Department of Health. The purpose of the meeting was to discuss our concerns over Clause 14(4)(9) and relevant Explanatory Notes of the Human Fertilisation and Embryology Bill (HFEB). A summary of the meeting can be found in English here [PDF] and in British Sign Language: [See post to watch Flash video] The Department of Health will be releasing their response to this meeting in the near future. Stop Eugenics would like to thank all those involved for making this meeting happen. ...