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Stop Eugenics!
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Transcript of ‘Debating Deafness And Embryo Selection: Are We Undermining Reproductive Confidence In The Deaf Community?’
Posted: April 23rd, 2008, 1:40pm BST by Alison Bryan
On the 9 April 2008, the Progress Educational Trust and the Wales Gene Park, organised a debate in Cardiff, “Debating Deafness And Embryo Selection: Are We Undermining Reproductive Confidence In The Deaf Community?” This debate was primarily to focus on the merits of Clause 14(4)(9) of the Human Fertilisation and Embryology Bill. This event was oversubscribed, and had a long waiting list; which gives indicates the topic’s current importance. A full English transcript, can now be found here [PDF]. ... -
Disability Now Coverage
Posted: April 14th, 2008, 1:45pm BST by Alison Bryan
Disability Now wrote a recent Editorial which can be seen here [PDF]. This compliments a recent article by Dr Steve Emery, in the same publication. Details of other media coverage can be found here and here. An updated list will follow shortly. ... -
Transcript: BBC Radio Wales, Good Morning Wales
Posted: April 11th, 2008, 1:02pm BST by Alison Bryan
BBC Radio Wales’ programme Good Morning Wales broadcast a debate on genetics on Wednesday 9th April 2008, at approxtimately 8:40am. Here’s a transcript, with thanks to Claire from TeamHado. Rhun ap Iowerth – Now you might assume that if deaf people have children, they’d hope that their hearing would be normal. However, you might be wrong. There’s an intriguing debate going on at the moment over whether such parents should be able to choose if their child is deaf or not. Bethan Rhys Roberts – well, a clause in the controversial Human Fertilisation and Embryology Bill going through Parliament at the moment would mean embryos used in IVF treatment would have to be screened out if the ... -
Letter from WFD to the Department of Health
Posted: April 8th, 2008, 8:30pm BST by Alison Bryan
The World Federation of the Deaf (WFD) wrote a letter to the Department of Health over their concerns over section 14(4)(9) of the Human Fertilisation and Embryology Bill (HFEB). A copy of this letter can be found here [PDF]. It is good to get international support, and to get a wider frame of reference to the implications of this proposed legislation. ... -
Department of Health response to 19 March meeting
Posted: April 8th, 2008, 11:58am BST by Alison Bryan
On 19 March representatives met the HFE Bill team at the Department of Health. The summary of this meeting can be found here in English and BSL. The Department of Health has since formally responded to points raised, in English here [PDF] and a BSL translation: [See post to watch Flash video] ... -
Summary of meeting at the Department of Health
Posted: April 1st, 2008, 3:36pm BST by Alison Bryan
On the 19 March 2008 representatives of Stop Eugenics, the BDA, the Progress Educational Trust and two individual genetics counsellors met with the HFE Bill Team at the Department of Health. The purpose of the meeting was to discuss our concerns over Clause 14(4)(9) and relevant Explanatory Notes of the Human Fertilisation and Embryology Bill (HFEB). A summary of the meeting can be found in English here [PDF] and in British Sign Language: [See post to watch Flash video] The Department of Health will be releasing their response to this meeting in the near future. Stop Eugenics would like to thank all those involved for making this meeting happen. ... -
Transcript: CBC Radio’s As It Happens
Posted: March 18th, 2008, 2:20pm GMT by Jen Dodds
The issue has now reached Canada - CBC Radio interviewed Tomato Lichy for the As It Happens programme, which was broadcast last night. Listen here (for a limited time). Many thanks to Mary Therese Durr for transcribing it below: Title: A deaf couple in England wants a second deaf child but the government won’t hear of it. Introduction: Tomato Lichy and his partner, Paula Garfield, are trying for another baby, but trying for this baby has put them in an unusual fight. Both parents were born with congenital deafness. Their first child deaf is deaf and now they want their second child to be deaf as well. Which is a possibility, thanks to modern genetic testing and ... -
Deaf People & Genetics: Media Coverage, Part 2
Posted: March 17th, 2008, 2:17pm GMT by Alison Bryan
Following this post, here’s the second summary of coverage on this subject (from the past week): Radio: BBC Radio 5 Live: The Victoria Derbyshire Show, Transcript here, Discussion here and here BBC Radio 4: The Moral Maze, transcript and online discussion BBC World Service: Have Your Say, transcript, discussion, and transcript comment BBC Radio 4: Today, Lord Winston & Professor Jones, transcript Television: BBC Breakfast: Interview with Tomato Lichy and Paula Garfield BBC Breakfast: Interview with Jackie Ballard (link to follow) Scottish Television: The Five Thirty Show, Transcript here BBC News: Catholic pressure on ... -
Transcript: BBC Radio 5 Live’s The Victoria Derbyshire Show
Posted: March 14th, 2008, 7:51pm GMT by Jen Dodds
Broadcast on Wednesday at 9am, this programme featured interviews with Tomato Lichy and Paula Garfield, the RNID’s Jackie Ballard and David Blunkett, then a phone-in discussion, with quite a few phone calls from parents of deaf children and people who know Deaf people. Listen here. Discussions here and here. Big thanks to Claire from Team HaDo for transcribing it below! Victoria Derbyshire – Also this morning an important and for some very worrying debate – should IVF treatment screen out embryos that are likely to develop disabilities? One deaf couple doesn’t think so. They want to try for a child using IVF, but say that a proposed law would force doctors to screen out some embryos ... -
Transcript: Scottish Television’s The Five Thirty Show
Posted: March 14th, 2008, 7:30pm GMT by Jen Dodds
The British Deaf Association’s Richard Jones was interviewed on Scottish Televisions’ The Five Thirty Show on Wednesday. You can watch it here (link valid until Tuesday 18th March). Richard uses BSL but there are no subtitles - many thanks to Rachel Belk for transcribing it below: Male presenter (Stephen): Now, who would choose for their child to be anything less than perfect? Well, a Deaf couple in say they, at least, would like the option. New fertility legislation is set to make it illegal to use embryos with an abnormality like deafness during IVF treatment, but the couple argue that is discrimination. Female presenter (Debi): They believe they have the right to choose to have a ...